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National Register of Users of Medically Indicated Substitution Substances (NRULISL)

PURPOSE OF DETECTION OF REQUESTED DATA

The basic task of detection of requested data in National Register of Medically Indicated Substitution Substances (further only NRULISL) is to enable health establishments providing substitution treatment to verify whether the patient is not provided with substitution therapy in another health establishment. This should prevent multiple prescription and leak of substitution substances to illegal market.

The purpose of detection of requested data is to assemble data on patient starting and finishing substitution therapy programmes, followed by verification, storage, protection and processing of the data. National Register of Medically Indicated Substitution Substances provides data for statistical surveys, epidemiological studies and health related research. The comprehensive data are used in defining, realisation and evaluation of preventive public health programmes and for estimates of financial costs necessary for securing substitutional therapy. The data are also used for drug control policy-making and strategy in the CR and in the international context also in EU.

NRULISL is a nationwide population register that builds on the information system operated in IHIS CR since 2000.

RANGE OF DATA PROVIDED BY HEALTH ESTABLISHMENTS TO NRULISL

The register records all patients included in substitution programme (see Standard of substitution therapy, Journal of MH CR, part 3/2008) by all physicians disregarding medical speciality.

1. Information on patient

  • personal identification number
  • municipality, district, region of permanent residence 
  • citizenship in EU
  • country (state)
  • health insurance company
  • health insurance number

2. Information on therapy

  • date of application of prescribed substitution substance (year, month, day)
  • prescribed substitution substance /medical preparation
  • result of examination for human immunodeficiency virus (HIV)
  • result of HBsAg examination
  • result of anti-HBsAg examination
  • result of anti-HCV examination
  • result of anti- HCV PCR RNA examination
  • drug used, declared by patient
  • date of report
  • diagnosis (F11, F19)

3. Information on termination and change of substitution therapy

  • reason of  termination
  • patient in conclusion of therapy underwent controlled detoxification
  • duration of detoxification in days
  • used substitution substance /medical preparation
  • records transferred– to whom (name of health facility)
  • date of  termination

STATISTICAL UNIT OF INVESTIGATION

The statistical unit is a patient included in substitution programme performed in any health establishment disregarding medical specialisation.